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Dubai Health and Angelman Syndrome Foundation Launch First Clinic in GCC at Al Jalila Children’s Hospital
  29 May 2024
  3 min for read
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Dubai Health, the first integrated academic health system in Dubai, has partnered with the Angelman Syndrome Foundation to establish the GCC’s first dedicated clinic at Al Jalila Children’s Hospital. This is the first-of-its-kind clinic in the region and aims to improve care for patients with Angelman Syndrome and raise awareness of this rare neurological disorder. The clinic will provide a supportive community hub where patients, families and caregivers can connect with experts and receive the best evidence-based care, bridging a gap in healthcare for those living with this condition.  

In line with Dubai Health’s Patient First promise, the partnership with the Angelman Syndrome Foundation represents new hope for individuals and families living with this rare neuro-genetic disorder. Affecting approximately one in 500,000 people worldwide, the early symptoms of Angelman Syndrome include a significant delay in obtaining developmental milestones such as walking within the first 12 months. Other clinical findings include speech delay, movement or balance disorder and often present with an apparent happy demeanor with frequent laughter and excitability.

The clinic will provide families in the UAE access to specialist healthcare professionals and evidence-based care while also enhancing future treatment through the power of Dubai Health’s integrated academic health system. Through harnessing the education and research that takes place within Dubai Health, this partnership aims to significantly improve the lives of patients and their families.

Dr. Abdulla Al Khayat, CEO of Al Jalila Children’s Hospital, said: “We are delighted to partner with The Angelman Syndrome Foundation to bring this specialized clinic to Al Jalila Children’s Hospital, part of Dubai Health care network. This crucial partnership is a beacon of hope for patients and families affected by this rare condition. By ensuring that we deliver the highest standard of care and driven by our Patient First promise, we hope to empower Angelman Syndrome patients and their families to lead fulfilling lives.”

Also commenting on the partnership, Amanda Moore, CEO of the Angelman Syndrome Foundation, said: "We are deeply honored to join forces with Dubai Health and Al Jalila Children's Hospital in this transformative initiative. This clinic will offer families in the UAE access to professionals with deep knowledge of Angelman Syndrome, expertise that has traditionally been challenging to locate. Raising awareness of rare conditions like Angelman Syndrome is crucial for early diagnosis and better patient outcomes. This initiative is part of our LADDER Learning Network, designed to bridge critical gaps in the healthcare landscape for families dealing with this rare disorder. We look forward to working closely with the team at Dubai Health to making a significant difference to the lives of patients and their families.”

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The Dubai Academic Health Corporation (DAHC), AXDEV Global, and Pfizer Global announced a public-private partnership to enhance care for patients diagnosed with chronic illnesses, supported by an independent grant from Pfizer Global Medical Grants.

The goal of the collaboration is to establish an evidence-based model in performance and quality improvement to support the adoption of best practices and boost capacity development for patient care with chronic illnesses at the individual, team, practice, and health systems levels.

Dubai will serve as a test-bed to plan and implement the model, identified as the ideal city for the research given its diverse cultural population and unwavering support of its academic health system from the Dubai Academic Health Corporation.

The findings will then be scaled to enhance chronic illness care in low- and middle-income countries (LMICs) in Asia-Pacific, the Middle East, and North Africa.

The Dubai Academic Health Corporation will host the initiative at its medical university, Mohammed bin Rashid University of Medicine and Health Sciences (MBRU), and AXDEV will provide expert implementation research and project management across every step of the program.

All activities are supported by Pfizer’s independent grant including the research, development, and execution of medical education activities, toolkits and implementation science across multiple health centers in Dubai.

Through a research project out of MBRU, the research will take diabetes as a case example to apply and measure the impact of the interventions in four local health centers in Dubai. Today, diabetes is a chronic illness that affects almost one in every five adults in the UAE and is one of the leading causes of kidney failure globally.

The evidence and results gathered in Dubai will then be scaled to LMICs to reorganize chronic illness care and provide critical tools and education for clinicians, allied health professionals, staff and healthcare administrators.

Commenting on the importance of public-private partnerships, Dr. Hanan Alsuwaidi, Chief Business Officer of the Dubai Academic Health Corporation, said, “The healthcare industry has experienced significant changes since the pandemic. World-class healthcare systems are now turning to proficient partnerships to reimagine business models and access new capabilities. Public-private partnerships, like this one between the Dubai Academic Health Corporation, AXDEV and Pfizer, leverage the strength of all its members to accelerate the adoption of best practices in patient care.”

Suzanne Murray, Founder and CEO of AXDEV Group, stated, “This public-private collaboration, that will bring cutting edge education solutions for healthcare professionals and their teams to directly impact clinical practice, is a testimony that three major organizations, as well as the health centers involved, are committed to improving patient health outcomes with evidencebased and quality education and implementation research.”

Yasser El Dershaby, Vice President, MERA Regional Cluster Medical Lead, Pfizer, also commented on the importance of health equity. “Accessible healthcare for patients living with chronic illnesses is critical given that they are tethered to the healthcare system. Especially in LMICs, it has always been Pfizer’s goal to enhance health equity in underserved communities. Our new public-private partnership with The Dubai Academic Health Corporation and AXDEV Global brings us one step closer to bridging these gaps, and I look forward to the results from our initial research in Dubai.”

23 Mar 2023 News
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Dubai Academic Health Corporation (DAHC), Dubai’s first integrated academic health system, announced that it has earned the prestigious Gold Seal of Approval® by the Joint Commission International (JCI) across all its hospitals and primary care centers.

By maintaining its international accreditation, DAHC demonstrates a steadfast dedication to upholding healthcare excellence for patients and their families. The accreditation also reflects its commitment to becoming a global leader in providing exceptional patient care by maintaining the highest quality and safety standards.

The Joint Commission International, a leading accreditation body for hospitals and healthcare organizations worldwide, conducted a thorough evaluation process to award DAHC hospitals with the Gold Seal of Approval®. This evaluation concentrated on critical operational systems related to safety and encompassed various facets of patient care. JCI's comprehensive assessment examined the hospitals' adherence to rigorous global standards, with a particular emphasis on patient safety, clinical quality, and risk management protocols.

Dr. Muna Tahlak, Chief Medical Officer of DAHC and CEO of Latifa Hospital, said: “Receiving JCI accreditation across Dubai Academic Health Corporation hospitals and healthcare facilities is a tremendous accomplishment that speaks volumes about our unwavering commitment to delivering exceptional patient care. This recognition validates the hard work and dedication of our teams and demonstrates our ongoing pursuit of excellence in healthcare in line with our ‘Patient First’ promise.”

Joel Roos, Vice President, International Accreditation, Quality Improvement and Safety, Joint Commission International, said: “The accreditation offered by JCI equips hospitals with processes that foster improvements across multiple areas, such as staff education advancements and the implementation of leading practices within the hospital environment. We commend Dubai Academic Health Corporation for its dedication to becoming a quality improvement organization and reaching this prestigious milestone, which showcases a strong commitment to patient safety and quality.

By successfully securing JCI's accreditation, patients and their families can have even greater confidence in the care they receive at DAHC hospitals, affirming the organization's pledge to place its patients first.

19 Jul 2023 News
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Dubai Health today announced the launch of ‘The Child Fund’ by Al Jalila Foundation, in the presence of His Highness Sheikh Mansoor bin Mohammed bin Rashid Al Maktoum, Vice Chairman of the Dubai Health Board of Directors. The pioneering annual charitable fund amounting to AED50 million will be dedicated to providing essential medical treatment for 3,000 children every year at Al Jalila Children’s Hospital, the UAE’s first and only dedicated children’s hospital.

The announcement was made at Al Jalila Children’s Hospital in the presence of Her Excellency Dr. Raja Easa Saleh Al Gurg, Chairperson of Al Jalila Foundation Board of Directors and Dubai Health Board Member; His Excellency Dr. Amer Sharif, CEO of Dubai Health and President of the Mohammed Bin Rashid University of Medicine and Health Sciences (MBRU), Dr. Amer Al Zarooni, Chief Executive Officer of Al Jalila Foundation, Dr. Abdulla Al Khayat, Chief Executive Officer of Al Jalila Children’s Hospital, in addition to a number of officials and major donors.

During his tour of Al Jalila Children’s Hospital, HH Sheikh Mansoor visited a group of young patients and was briefed on the hospital’s specialty services that underscore its commitment to prioritising child-friendly healthcare focused on quality and excellence.

His Highness Sheikh Mansoor bin Mohammed bin Rashid Al Maktoumconveyed his gratitude to all donors and contributors who play a pivotal role in upholding the highest standards of excellence within the health system in Dubai. Their collective efforts contribute significantly to providing the best forms of healthcare, particularly for children. This commitment aligns with the enduring values of giving and compassion that have consistently defined the people of the UAE and its society, His Highness said.

Sheikh Mansoor said: “The launch of 'The Child Fund' underscores our steadfast dedication to ensuring comprehensive care for children, which is a paramount focus within Dubai's health system. We consider it our fundamental responsibility to uphold the highest standards of care for them, as they symbolise the foundation of our future. Through such community initiatives, our goal is to extend support and deliver treatment to the largest number of children, with the ultimate aim of enabling them to lead normal lives.”

‘The Child Fund’ will serve as a dedicated children’s charity programme designed to raise funds for providing essential, life-saving medical support to children in need. Beyond being a beacon of hope for children and their families in the UAE, the initiative aims to cultivate a culture of giving within the community, ensuring that every child receives the care they need to thrive.

Her Excellency Dr. Raja Al Gurghighlighted Al Jalila Foundation’s role in supporting Dubai Health’s philanthropic mission. She said: “For over a decade, Al Jalila Foundation has made a significant impact through its A’awen patient treatment programme, touching the lives of thousands of patients and their families across the UAE. With this new fund, we pledge to extend the reach of our care and provide renewed hope for a brighter and more promising tomorrow for even more children. ‘The Child Fund’ reaffirms our heartfelt commitment to securing a healthy future for our children. Today, we proudly recognise the unwavering dedication and generosity of our donors and supporters who, together, united by care and compassion, are lighting the path to healing young lives.”

Dr. Abdulla Al Khayat, said:“’The Child Fund’ goes beyond just providing essential medical treatment for children in need, it is a beacon of hope for families and their loved ones facing life-threatening illnesses. Through this initiative our dedicated team of doctors and physicians can extend life-saving care to those who cannot afford access to necessary treatments.”

“We are eternally grateful for the opportunities ‘The Child Fund’ will provide to our doctors and physicians, aligning with Al Jalila Children's unwavering dedication to excellence in treating young patients. The Fund, reflecting our ‘Patient First’ promise, will enable us to extend care to children of all ages, empowering them to step into a more promising tomorrow," said Dr. Al Khayat.

'The Giving Wall'

During the launch, 'The Giving Wall' was unveiled as a tribute to the donors and contributors that have impacted children’s lives through their support to Al Jalila Foundation. They were invited to sign a pledge in support of the AED50 million annual fund dedicated to providing essential medical care for 3,000 children per year. Notable partners include the Mohammed Bin Rashid Al Maktoum Humanitarian & Charity Establishment; Easa Saleh Al Gurg Charity Foundation; Islamic Affairs & Charitable Activities Department; Awqaf Dubai; Albatha Holding; IFFCO; and Tarahum.

‘The Child Fund’ builds on Al Jalila Foundation’s impactful history of philanthropic achievements in supporting a number of healthcare programmes in medical education, research and patient care transforming thousands of lives. The Foundation has supported medical treatment to over 8,600 patients, including 30% children, suffering from life-threatening conditions including cancer, cardiovascular disease and other chronic illnesses, underscoring its ongoing commitment to transforming lives of those in need in the community.

Click the link ‘The Child Fund’ for more information.  

27 Nov 2023 News

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